Tuesday, November 10, 2009

Reading about neuropathy

Neuropathy has been with me for 6 years. Fortunately I only have numbness, not pain, in the legs and hands and can lead an fairly normal life. I do have trouble at times with my balance but I try to hide it from friends. As I said in the previous post there isn't a wealth of information about my disease. Here are a few books that might shed some more light on the disease and treatments. I found them in my local library. There are two by John A. Senneff, "Numb Toes and Aching Soles" and "Numb Toes and Other Woes". A third book is by Norman Latov, "Peripheral Neuropathy: when the numbness, weakness and pain won't stop". I have yet to read the last book but I will soon.

Thursday, October 29, 2009

Neuropathy

There are 20 million people who suffer from autoimmune diseases. I am one of them. I have anti-mag neuropathy. My symptoms are: very tender soles of the feet, numbness from my feet to my knees and lately hand and finger numbness. The symptoms, numb shins started about seven years ago. I have been treated with rituximab about four years ago and there was some improvement. My doctor has not recommended more or different treatment. It has now been seven years since the first symptoms started when I was 60.

The reason for this blog is simple. My condition was first recognized in the early 1980's. There is not a wealth of information, specifically anti-mag. I would like to compare notes with others who have the same affliction about: onset, diagnosis, treatment, progression, activity levels, doctors.

With all that said I lead a normal active life. Being active makes the neuropathy feel better, doing nothing makes me feel worse, but more on that later.