More on Anti-mag

Anti-MAG neuropathy is an autoimmune disorder caused by an immune attack directed against peripheral nerve myelin. This condition was first recognized in 1980. More than 80% of patients are males and the disease onset is almost always in the sixth decade or later. Part of my diagnosis was the result of a blood test that show high levels of a paraprotein. Treatment with rituximab lowered two out of three blood markers with a noticable change in the neuropathy. That was almost five years ago and I haven't had a blood test or been treated since that time. I am due to visit my neurologist soon but I doubt he will recommend any treatment or tests, preferring to leave well enough alone. Information on the internet says there is little or no progression over many years. I suspect this a rather rare disease with most neurologist seeing few cases over many years.

That leads to this blog, I don't know where the disease is going, more information or personal accounts are appreciated.