Tuesday I ventured to UCSF to be examined by one of their neurologist. It has been about five years since my last visit. This gives me two neurologist to match notes on how to treat me. Unfortunately my condition is rather rare. Neurologist one says he has seen maybe 4 cases in 30 years, neurologist two says he has seen maybe one in five years. That doesn't make for a wealth of historical records on the disease. Another blood test is on the agenda to see where the blood marker are. After being treated with rituximab a few years one of the blood markers returned to normal.
It appears I am heading for another treatment with rituximab.
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