Saturday, December 11, 2010

Neuropathy Timeline

Here is a time line of sorts on my neuropathy.

Age 60: sore feet, noticed a functional difference in my feet when I ran, felt like I was wearing socks all the time.
Age 62: all symptoms getting worse, went to the doctor, chiropractor and podiatrist trying to figure out what was wrong.
Age 63: sore feet, numb shins, went to the neurologist. Had the following tests: nerve conduction, spinal fluid removed, blood test sent to Athena Diagnostics. Bad results on SGPG Elisa, MAG Elisa, MAG Western. Officially diagnosed with CIDP.
Age 64: following an examination with another neurologist I was treated with rituximab, once a week for four weeks. I noticed an improvement within the month.
Age 65: Blood test for SGPG Elisa came back closer to normal, MAG Western was normal. At this point I still had some numbness in my lower legs and feet and the soles of my feet were very tender. There was a very slight numbness in two fingers of my right hand.
Age 66: at this point I could walk okay but not hike any distances, I could ride a bike long distances and ski. There was very little progression of the disease during this time.
Age 68: started noticing increasing numbness in my hands, it has now spread so both hand which feel tight and numb. Another blood test indicated the SGPG Elisa was much higher than the initial test and MAG Western returned to levels of the original test. Clearly the disease was back. Two months ago I experienced a severe loss of balance which they attributed to an inner ear virus. I believe it was caused by the CIDP. Right now walking is difficult, skiing or riding a bike is out of the question. I also experienced a drop in blood pressure after riding a stationary bike, which I believe was caused by the CIDP. In two days I will begin another series of treatments with rituximab. I'm hoping it will work and I will get back to some sort of normal.

1 comment:

  1. Lee, you look a retired teacher and coach in your photo :) I mean that in the best of ways!!
    Happy Holidays to you!

    ReplyDelete