Today proves that I need to keep after my doctor. After waiting a few weeks to hear from him I scheduled an appointment. There are two more tests recommended and requested by my doctor and I was never contacted. His office failed to contact me and the doctor never followed up to be sure it was done. Mistakes happen but I'm glad it wasn't life threatening.
Two more tests, one blood test that will compare three blood markers that were out of whack five years ago indicating my neuropathy. Two of these markers returned to normal after being treated with rituximab but I suspect they are abnormal now. The second test is for immunofixation and electrophoresis protein. I'll have to google those terms and education myself. The doctor didn't specify the reasons for the second test.
The doctor did say that CIDP is not very common and CIDP with sensory deficiencies is even less common. Reading into that I would say there is not much history and knowledge about the disease nor is there any pattern of successful treatment.
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