Test Results

Three of my tests came back with no change or very little change from previous years. Another blood test came back with a huge change. There were three blood markers used to identify my neuropathy, one is supposed to negative and is positive, a second should be less than 1600 and is 12800, a third should be less than 3200 and is 819200. The last one is way off the charts in my book and 4x the size when I was first tested.

I was treated with rituximab and that brought these blood marker almost back to normal. That was 6 years ago. So naturally I am thinking about another treatment with rituximab with the hope that it will slow down this disease like it did the first time.

I'm not completely surprised about the numbers as the neuropathy has spread to my hands in the last six months. It is a lesson in being more forceful with the doctor, I thought we should have done the blood test a year ago. When the doctor returns the first of the month we will have a discussion about future treatment i.e. rituximab.